Mark Your Calendars! The Little Legs Big Heart Foundation invites you to the second annual
2025 Little Legs Big Heart Skeletal Dysplasia Conference:
Connecting Hearts, Minds & Medicine
📅 Thursday to Sunday, October 23-26, 2025
📍Hilton Downtown West Palm Beach, FL
Event Details
Welcome to the Movement
The Little Legs Big Heart Foundation proudly invites YOU to the Second Annual Little Legs Big Heart Skeletal Dysplasia Conference, happening in sunny West Palm Beach! After a wildly successful debut year with 188 attendees, we’re back—bigger, bolder, and with even more heart.
This is more than a conference.
It’s a celebration, a support system, a safe space, and a serious game-changer for the skeletal dysplasia community.
Whether you’re newly diagnosed, a long-time warrior, a caregiver, healthcare professional, or just someone looking to learn and connect—this is for YOU.
What’s On the Agenda?
We’re diving into the conversations that matter, including:
✨ Cutting-edge medical care & updates
🧬 Limb lengthening, vosoritide, and clinical trials
🧠 Mental health & emotional wellness
👨👩👧👦 Support for families, parents & caregivers
📣 Real-life stories, shared lived experiences & open dialogue
And it’s not just about the hard stuff. We’re also bringing the FUN:
🎨 Face painting & magic shows for the kids (and kids at heart)
🌊 Morning walk/run/rolls along the water
💦 Accessible pool workouts & wellness sessions
🎤 Karaoke, dancing, concerts & nightly entertainment
🧸 Fully staffed kids’ room so adults can breathe easy
And YES—all meals and activities are included with registration!
Conference Location and Overflow Hotel
Hilton Downtown West Palm Beach
600 Okeechobee Blvd, West Palm Beach, FL
(561) 231-6000
The conference location is right off I-95 and adjacent to Rosemary Square, just two miles from the waterfront. Enjoy:
Zero-entry, resort-style pool & cabanas
Restaurants & live music
Wellness workshops, astronomy & lawn games
Luggage storage for late departures
Check-in: 4:00PM | Check-out: 11:00AM
Hyatt Place West Palm Beach/Downtown
295 Lakeview Ave, West Palm Beach, FL 33401
(561) 655-1454
Check-in: 4:00PM | Check-out: 11:00AM
Room Reservations
You will receive an email with booking links once you have registered.
Closest Airports
Palm Beach Int’l (PBI): 4 miles away with Hilton shuttle service
Ft. Lauderdale (FLL): 49 miles south
Orlando (MCO): 130 miles north with Brightline Train to WPB
Registration Information - A Few Must-Know Details
✅ Membership Required – It’s FREE!
You must be a Little Legs Big Heart Foundation Member to register.
Join the Foundation & Access the Portal
✅ Pre-Registration is Required
There will be no on-site registration, and all attendees must wear their official conference name badge to participate in any activities.
✅ Book Your Hotel
Once you register for the event, be sure to book your hotel. The conference will be taking place at The Hilton. We have an additional room block available at The Hyatt Place West Palm Beach/Downtown for those interested in a more cost effective option within walking distance from The Hilton.
✅ Deadlines
→ LLBH Super Early Bird Registration deadline is July 3, 2025.
→ Earlyish Bird Registration pricing deadline is August 29, 2025.
→ All registration fees are non-refundable after September 1, 2025.
→ Hotel Room Reservation deadline is September 18th, 2025.
→ LLBH Conference Registration will close on October 20, 2025.
**Again, there will be no onsite registration at the conference.
✅ If you live locally, you can register and join us for all of the activities without staying at the hotel.
Pricing
Super Early Bird
Single: $50
Couple: $75
Physicians/Industry: $100
Family (3+ people): $120
Early-ish Bird
Single: $65
Couple: $80
Physicians/Industry: $115
Family (3+ people): $135
Final Pricing
Single: 80
Couple: 105
Physicians/Industry: $130
Family (3+ people): $150
Volunteers
Want to be part of the magic? It takes a village—and we’d love for you to be part of ours. Students seeking service hours are especially welcome!
Steps To Register
1. Become a Member – Join Here
2. Complete the LLBH Registration Form & Submit Payment — Register & Pay Here
→ LLBH Super Early Bird Registration deadline is July 3, 2025.
→ Earlyish Bird Registration pricing deadline is August 29, 2025.
→ All registration fees are non-refundable after September 1, 2025.
→ Hotel Room Reservation deadline is September 18th, 2025.
→ LLBH Conference Registration will close on October 20, 2025.
There will be no on-site registration at the regional.
3. Reserve Hotel Room
After you have completed the LLBH Registration, you will receive an email with the special
access code and/or link to make your room reservations.
Deadline to reserve a room is September 18!
Let’s Make Magic
Got a topic, session idea, or question? Don’t be shy. This is YOUR space. YOUR community. YOUR voice.
📬 Reach out to Kristen directly: kristen@littlelegsbigheartfoundation.org
Whether you’re in the middle of a treatment journey, navigating a new diagnosis, or simply craving connection—this is where it all comes together.
This isn’t just a weekend.
This isn’t just a conference.
This is a movement.
If you have any questions or need assistance, please contact:
Kristen DeAndrade
Little Legs Big Heart
Founder & President
kristen@littlelegsbigheartfoundation.org