Welcome To Camp Ellellbee

Brought To You By:

Designed & Delivered By:

Sponsored By:

A Family Camp for Households Navigating Life with Skeletal Dysplasia

Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community.

Created by the Little Legs Big Heart Foundation, presented by GutMonkey, and sponsored by BioMarin, Camp Ellellbee exists to support families navigating life with skeletal dysplasia…together.

What You Can Expect

Each camp takes place at a peaceful, family-friendly outdoor location (Please see the map and list of general locations below). We keep things relaxed, playful, and supportive by creating space for both adventure and downtime.

Your weekend will include:

  • Facilitated activities/breakout sessions

  • Breakout sessions, family games, and time to explore outside

  • Simple, cozy cabins with bunk beds

  • All meals provided (dietary needs welcome)

  • Shared stories, laughter, and real connection

Who Can Join

Camp Ellellbee is for households where at least one immediate family member lives with any form of skeletal dysplasia.

That includes:

  • Children and their parent(s) or legal guardian(s)

  • Primary caregivers (like grandparents) who live in the same household

Extended family members who don’t live in the same home aren’t eligible unless special circumstances apply. If you’re unsure, reach out – we’re happy to talk it through.

  • Six Regional Camps

    Locations across the U.S, you choose the one most convenient to you.

  • Weekend Format

    Friday afternoon to Sunday midday.

  • Free To Attend

    Thanks to our incredible sponsor BioMarin!

  • Travel Is Not Covered

    Families are responsible for their own transportation.

Ready to come to camp?

Here’s what you need to know:

Take a look at the list of locations below and choose the one that works best for you & your family.

Please note: Some camps are currently open for sign-ups, while others are still in the opt-in stage. If you select a camp that’s not yet accepting forms, we’ll notify you by email as soon as that location opens.

Before you begin, please have the following details ready:

  • Birthdates for everyone attending

  • Insurance card information

    Any relevant medical or medication details

The application takes about 30 minutes to complete and cannot be saved so we recommend setting aside time to complete it in one sitting.

If you’ve opted in to receive updates about camp and launch dates, you’ll also get a confirmation email letting you know you’re signed up for future updates.

If you have any questions, feel free to reach out at info@littlelegsbigheartfoundation.org.

**BioMarin is not involved in the selection process for program participants. All decisions regarding attendance are made independently by the program organizers. BioMarin and the Little Legs Big Heart Foundation do not receive access to applicant information unless explicit consent is provided by the applicant during the registration process.

  • Impact

    “Camp Ellellbee’s counselor engagement and activities were phenomenal. You can tell they really love what they do and were in tune to each and every family and child's needs.”

  • Impact

    “We had an amazing time and are so thankful to The Little Legs Big Heart Foundation and GutMonkey for hosting this camp. The ability to enjoy it as a family truly is priceless.”

  • Impact

    "I like going places that remind me that there are more of me and I am not the only one."

  • Impact

    “My daughter created connections that have been incredible for her development. We as a family felt acknowledged by the way the other families are also feeling, thinking and managing life with skeletal dysplasia. All thanks to the way the camp was built.”

  • Impact

    “Honestly, we enjoyed every single thing about this experience! From registrations to detailed packing list, traveling instructions, food and all activities. I appreciate how everything was so structured. The activities, team building, and the whole schedule was incredible!”

Camp Ellellbee was created with so much love and intention for families like yours. We know that living with skeletal dysplasia can feel isolating at times, and we also know how powerful it is to be in a space where you don’t have to explain yourself.

This is a weekend to breathe, to laugh, to connect, and to just be together.

We’re building something meaningful here, and we’d be honored for you to be part of it.
Can’t wait to welcome you to camp!

We Hope to See You There!