Welcome To Camp Ellellbee

Brought To You By:

Designed & Delivered By:

Sponsored By:

A Family Camp for Households Navigating Life with Skeletal Dysplasia

Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community.

Created by the Little Legs Big Heart Foundation, presented by GutMonkey, and sponsored by BioMarin, Camp Ellellbee exists to support families navigating life with skeletal dysplasia…together.

What You Can Expect

Each camp takes place at a peaceful, family-friendly outdoor location (Please see the map and list of general locations below). We keep things relaxed, playful, and supportive by creating space for both adventure and downtime.

Your weekend will include:

  • Facilitated activities/breakout sessions

  • Breakout sessions, family games, and time to explore outside

  • Simple, cozy cabins with bunk beds

  • All meals provided (dietary needs welcome)

  • Shared stories, laughter, and real connection

Who Can Join

Camp Ellellbee is for households where at least one immediate family member lives with any form of skeletal dysplasia.

That includes:

  • Children and their parent(s) or legal guardian(s)

  • Primary caregivers (like grandparents) who live in the same household

Extended family members who don’t live in the same home aren’t eligible unless special circumstances apply. If you’re unsure, reach out – we’re happy to talk it through.

  • Six Regional Camps

    Locations across the U.S, you choose the one most convenient to you.

  • Weekend Format

    Friday afternoon to Sunday midday.

  • Free To Attend

    Thanks to our incredible sponsor BioMarin!

  • Travel Is Not Covered

    Families are responsible for their own transportation.

Ready to come to camp?

Here’s what you need to know:

Take a look at the list of locations below and choose the one that works best for you & your family.

Please note: Some camps are currently open for sign-ups, while others are still in the opt-in stage. If you select a camp that’s not yet accepting forms, we’ll notify you by email as soon as that location opens.

Before you begin, please have the following details ready:

  • Birthdates for everyone attending

  • Insurance card information

    Any relevant medical or medication details

The application takes about 30 minutes to complete and cannot be saved so we recommend setting aside time to complete it in one sitting.

If you’ve opted in to receive updates about camp and launch dates, you’ll also get a confirmation email letting you know you’re signed up for future updates.

If you have any questions, feel free to reach out at camps@gutmonkey.com.

***BioMarin is not involved in the selection process for program participants. All decisions regarding attendance are made independently by the program organizers.

Camp Anderson Anchored

Old Town, Florida - November 21 - 23

RSVP

Camp Twin Lakes

Atlanta, Georgia - November 14-16

RSVP

Rising Treetops

Oakhurt, NJ - October 17-19

RSVP

Ability First/Camp Paivika

Cedarpines, California - October 3-5

Completed

Camp For All

Dallas, Texas - September 26-28

Completed

New England Camp

New Hampshire - September 19-21

Completed

  • Impact

    “We are so thankful and blessed to have Kristen and the Little Legs Big Heart community in our lives. The inspiration and incredible impact that she has on our journey and so many others is so admirable. We love that Kristen keeps us connected with other families that share similar journeys. Thank you for staying involved and connected through communication and planned activities.”

    -Love, Lisa and Cambell Osborne

  • Impact

    “Evie was born with pseudoachondroplasia in 2009 and has been on an incredible, life-changing journey since then with the mentorship and support of Little Legs Big Heart and the unicorn in our lives—Kristen. The Foundation is a bright light of hope in our lives. One that is inclusive and on a constant mission of education and advocacy for all people with a skeletal dysplasia will bring great change and support to our life.”

    -The Henderson Family

  • Impact

    “Last year I faced a serious scare with my back, and Kristen from the Little Legs Big Heart Foundation immediately stepped in by arranging travel and medical care with a world-renowned skeletal dysplasia team. Thankfully my back was fine, but doctors recommended leg surgery to correct bowing, which Kristen and the Foundation supported every step of the way by scheduling appointments, providing medical funding, and offering constant reassurance. Six months later I underwent surgery in Florida, and Kristen stayed in close contact, calming my anxieties and guiding me through recovery. Now, two months post-surgery, I feel incredibly happy and grateful, and none of this would have been possible without Kristen and the Little Legs Big Heart Foundation.”

    -XO, Gywn

Camp Ellellbee was created with so much love and intention for families like yours. We know that living with skeletal dysplasia can feel isolating at times, and we also know how powerful it is to be in a space where you don’t have to explain yourself.

This is a weekend to breathe, to laugh, to connect, and to just be together.

We’re building something meaningful here, and we’d be honored for you to be part of it.
Can’t wait to welcome you to camp!

We Hope to See You There!