Living Life Beyond Height
One Step, One Heart, One Community
The Little Legs Big Heart Foundation is dedicated to empowering and supporting individuals with skeletal dysplasia and their families.
We strive to redefine inclusivity and acceptance within the dwarfism community, encouraging everyBODY to resiliently Live Life Beyond Height. It doesn’t matter how long your legs are, you can only take one step at a time.
Mark Your Calendars! The Little Legs Big Heart Foundation invites you to the third annual
2026 Little Legs Big Heart Skeletal Dysplasia Conference:
📅 Thursday to Sunday, October 29 - November 1, 2026
📍West Palm Beach, FL
What We Do
-
We engage with local and national communities to raise awareness about skeletal dysplasia and provide essential support to individuals and families.
-
We provide comprehensive educational materials to help individuals with skeletal dysplasia and their families make informed decisions. Our resources cover a wide range of topics, including treatment options, daily living adaptations, and advocacy tips.
-
COMING SOON! Our directory will feature a comprehensive list of pediatric and adult skeletal dysplasia medical specialists nationwide and eventually worldwide, ensuring that individuals have access to the best care possible.
-
COMING SOON! We are developing a network to offer emotional support and connect individuals and families affected by skeletal dysplasia. This initiative will provide a safe space for sharing experiences, offering advice, and building lasting connections.
-
We don’t know unless we try and together with professionals and companies, we are committed to advancing research in the field of skeletal dysplasia and improve existing treatments to enhance patient outcomes.
-
Our Annual Conference connects patients, families, and medical professionals. Featuring medical lectures, family-led discussions, and fun for everyone, it focuses on improving the quality of life for those living with skeletal dysplasia and fostering community connections.
-
Through international collaborations and outreach efforts, we promote a culture of empathy, understanding, and acceptance worldwide. We strive to raise global awareness about skeletal dysplasia and advocate for the rights and inclusion of individuals with the condition.
Emotional Support Network
The Little Legs Big Heart Foundation is proud to officially launch our long-envisioned Emotional Support Network (ESN)—a community-driven, inclusive mental and emotional health support system designed specifically for individuals with skeletal dysplasia and their families.
In English
En Español
How You Can Help
We need YOU! Whether through volunteering, donating, or spreading awareness, your support helps us continue our vital work. Together, we can create a fun, inclusive community of hope, strength, and limitless possibilities for children and adults with skeletal dysplasia.
Volunteer
Join our team and make a difference by assisting at events, participating in community outreach, or helping with administrative tasks. Share your professional expertise and become an advocate by spreading awareness about our mission.
Sponsor
Partner with us through corporate sponsorships to support our annual conference, fundraising events, continued advocacy efforts or provide in-kind donations of goods or services that help us reduce costs for these events and further our mission.
Donate
Make a one-time or recurring donation to support our ongoing initiatives and help us provide essential care to individuals with skeletal dysplasia. Consider hosting a fundraiser, or leveraging your employer’s matching gift program to maximize your impact.
The Book
Dive into, our founder, Kristen’s, memoir on growing up with achondroplasia dwarfism. A woman who has faced adversity head-on since childhood details life growing up with achondroplasia and learning that she was born to go against the grain from the very beginning. Each chapter is filled with candid reflections, poignant moments, and powerful lessons that will resonate with anyone who has ever felt different or faced obstacles. Her story is a testament to the power of resilience, the importance of self-acceptance, and the beauty of living life authentically.
Get your copy today:
Amazon
Barnes and Noble
Balboa Press
Big love. Big dreams. Baby steps.
