Emotional Support Network

A Safe Space. A Stronger Community. A Healthier You

The Little Legs Big Heart Foundation is proud to officially launch our long-envisioned Emotional Support Network (ESN)—a community-driven, inclusive mental and emotional health support system designed specifically for individuals with skeletal dysplasia and their families.

The Emotional Support Network (ESN) is designed to provide support in two meaningful ways. The first is through individualized coaching, offering one-on-one emotional support and guidance for individuals with skeletal dysplasia and their family members. The second is through community-centered events and group offerings that foster connection, shared experiences, education, and emotional well-being. Together, these two components create a support system that combines personalized care with the power of community.

Rooted in lived experience and guided by licensed mental health professionals, the ESN provides a safe and supportive space to navigate the emotional and psychological aspects of life with a rare condition. From managing complex medical journeys and treatment decisions to exploring identity, relationships, and belonging, this network is designed to support the whole person—not just the diagnosis.

The ESN brings individuals and families together across all ages and life stages, creating a space where community members can share openly, feel understood, and build resilience alongside others who truly “get it.” We are also proud to offer coaching for both English- and Spanish-speaking members, ensuring greater accessibility and inclusion.

Living with skeletal dysplasia can come with unique emotional challenges—but no one should have to navigate them alone. Behind every diagnosis is a deeply human experience. From social barriers to questions of self-esteem and identity, mental health is a critical, yet often overlooked, part of the journey.

The Emotional Support Network exists to change that.

We are creating a space where every story is valued, every voice is heard, and every individual feels supported.

The ESN serves individuals with skeletal dysplasia—including children, teens, and adults—as well as parents, caregivers, siblings, and extended family members. The program is designed as a two-part initiative, offering both one-on-one coaching for personalized support and ongoing group sessions and events focused on emotional well-being while navigating life with skeletal dysplasia.

No matter where you are in your journey—you belong here!
And our coaching?! Your first four sessions are FREE.

Our Approach

01
Inclusion

We celebrate the diversity within the skeletal dysplasia community—honoring all perspectives, experiences, and choices.

This network is built on three core pillars:

02
Connection

We believe healing happens in community. Shared experiences create powerful bonds and lasting support.

03
Empowerment

Through access to resources and support, we help individuals and families feel seen, heard, and equipped to thrive.

“It doesn't matter how long your legs are—you can only take one step at a time. And sometimes, that step is asking for support.”

Meet Our Providers

Join The Network

We’re in it together!

Whether you’re seeking support, connection, or simply a place to be understood—the Emotional Support Network is here for you.