Member Dashboard
Welcome to the community! This new account experience includes all of the resources you need.
Welcome to your Little Legs Big Heart Family!
We’re thrilled to have you join our community. Together, we are empowering individuals living with skeletal dysplasia and their families to live life beyond height. As a member, you have access to our resources, support, and an inclusive network of people who understand your journey. Our priority is building community and fostering connections between children and adults living with skeletal dysplasia, their families, advocates, health care professionals and researchers.
Stay tuned for details regarding our 2025 Skeletal Dysplasia Conference: Connecting Hearts, Minds and Medicine. This event will be another fantastic opportunity to connect, learn, and share experiences. We hope to see you there!
Be sure to follow us on social media (@littlelegs.bigheart.foundation) for updates on future initiatives, including expanding our national and regional coverage, creating a directory of healthcare providers, and offering a grant for members in need of specialized care who cannot afford expert providers due to insurance barriers, financial struggles, etc.
Thank you SO much for being a part of this family.
Questions, ideas or feedback? Please reach out! We look forward to making strides, one step at a time, together!
With a Big Heart and Abundant Gratitude,
Kristen
Provider Directory
Access the best care available with our interactive directory for all things skeletal dysplasia.
Events
Stay informed about upcoming events, conferences, and workshops that provide valuable opportunities for education, support, and community building.
Resources
Resources and support tailored to individuals and families affected by dwarfism.
The Book
Dive into, our founder, Kristen’s, memoir on growing up with achondroplasia dwarfism. A woman who has faced adversity head-on since childhood details life growing up with achondroplasia and learning that she was born to go against the grain from the very beginning. Each chapter is filled with candid reflections, poignant moments, and powerful lessons that will resonate with anyone who has ever felt different or faced obstacles. Her story is a testament to the power of resilience, the importance of self-acceptance, and the beauty of living life authentically.
Get your copy today:
Amazon
Barnes and Noble
Balboa Press
Big love. Big dreams. Baby steps.
Upcoming Events
We offer three types of events: conferences, camps, and partner events from our sister organizations. Here’s a list of everything coming up this year!
