Provider Directory

Welcome to the community! This new account experience includes all of the resources you need.

Search below to find care providers near you who have experience with skeletal dysplasia.

Please note: Little Legs Big Heart does not endorse or independently verify any provider listed.
This directory is based on community submissions from individuals who shared that they received informed and compassionate care.
We encourage you to contact providers directly to determine if they’re a good fit for your needs.

Finding care made easier

This directory was created to help individuals and families affected by skeletal dysplasia find care providers with experience in this area. It includes pediatric and adult providers across the United States.

You'll find a wide variety of providers – including clinical geneticists, orthopedic specialists and surgeons, physical and occupational therapists, neurosurgeons, mental health professionals, and more – all recommended by community members and known for their experience supporting individuals with skeletal dysplasia. 

This is a growing, community-powered resource

If you know a provider who has made a positive impact on your journey, please share their information with us using this form, or email us.

Together, we can make it easier to find knowledgeable, supportive care at every stage of life.

Nominate a care provider

Are you a parent of a child with achondroplasia?

MyAchonJourney.com – created by QED Therapeutics, a BridgeBio company, in partnership with health care providers and the achondroplasia community – offers trusted information and easy-to-use tools to help you feel informed and supported.

A great place to start is the Medical Checklist for Ages 0–5. Based on medical guidelines, it highlights important health checks and the specialists who may be part of your child’s care in the early years.